So last week we had “World prematurity day” but what does that actually mean to most people?
It means babies who are born well before their due date! The official cut off point where a baby is declared viable ( reasonable chances of survival ) is 24 weeks gestation.
To me “World Prematurity Day” means my boys! These bundles of joy were born at 25 weeks 6 days gestation. At the start of week 25 we were sent from East Surrey Hospital all the way to Portsmouth to the Queen Alexandra Hospital. 5 days later contractions started and the boys were born at 25 weeks 6 days August 14th 2011 at 10.30am
Rather than having to write all of it again and thereby making this post far too long, I shall now give you a couple of links which will enable you to read our story at a time that is convenient to you:
The website is called ‘MotherhoodJourneys’ it is run by @motherscuffer and earlier this year she asked me to write down our story, which she put up on her site in 2 parts:
We were aware of all the problems, complications and so on that being this premature could have but we prefer to be positive and take things on 1 problem at the time!
The next reasonably big thing we are hoping to go smoothly without any problems will be their check up at Southampton General for their heart conditions. I am getting more familiar with medical terms than I ever really wanted to be. PDA, VSD, Pulmonary stenosis these can all be pretty serious, all of them affect the heart and most of them are very common in premature babies. Then there is the terminology that is used in treating a pulmonary stenosis, one treatment is the ballon valvuloplasty.
Now imagine you have no medical knowledge whatsoever or in my case you are not married to a doctor or have a doctor in the family. When you are first told that your babies have these conditions I can very easily imagine that it would be quite frightening .
That’s were organizations like these come in:
They’re actively helping to fund the necessary research and development to understand the causes of preterm delivery and the health problems premature babies face. They also help educate people what it means to have a premature baby and how to care for them and support those who need a helping hand.
Two relentless supporters of these wonderful organizations are
@kykaree & @pinkwellies79
These two ladies are so passionate about prematurity, caring for a premature baby and how to cope yourself with the problems that having a premature baby can put upon you. it still amazes me how determined some people can be?
@kykaree writes about her life here:
@pinkwellie79 writes about her life here:
Unfortunately not every premature baby does make it, we know all to well about this. There are these wonderful people who might just be able to help you grief in a wonderful way:
@sayinggoodbyeuk & @bearspoon
Last but not least I want to thank
Queen Alexandra Hospital Portsmouth
Princess Anne Hospital Southampton & Southampton General Hospital
For all their hard work and dedication!